Haemophilia
Association of Lesotho
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ADVOCACY
The Haemophilia Association Lesotho (HAL) plays a leadership role in advocacy by convening the government of Lesotho to promote equitable access to care and to current and emerging treatments. We leverage global and regional advocacy work to enhance the impact of national advocacy initiatives related to policy, care delivery and procurement.

The need

People with bleeding disorders’ communities face many challenges getting access to proper care in many countries around the world. The gap between observed versus expected people with hemophilia is even greater than it was estimated in the past. HAL aims to support the bleeding disorders community by addressing these needs.

 

HAL goals

  • Identify 20,000 new people with inherited bleeding disorders
  • Improve access to care through the training and education of patient leaders and healthcare providers on outreach, diagnosis, the management of bleeding disorders, and evidence-based advocacy
  • Increase government support to establish or expand existing national bleeding disorders care programs
 
Objectives

The is to foster a better understanding of the challenges related to people with hemophilia (PWH) in Lesotho.

 
WFH Africa BD Declaration 2021
In 22 April 2022 HAL  celebrated  Haemophilia day, it was a health walk from our offices to ministry of Health to present African declaration to the minister And Director General and principal secretary and they all graced us with their Presence, this declaration was to be presented in parliament as a policy and advancement of care for people with haemophilia , The walk walk was very early and it was a success for our advocacy and awareness, we had so much media coverage from national television to private printed news and would like to thank everyone, we were also graced by the Presence of Lesotho Defense Force band , we say salute to their impeccable Presence.

OTHER ADVOCACY ACTIVITY

1

MEETING WITH NDSO IN NOVEMBER 2022

Haemophilia Association of Lesotho – HAL Executive had a meeting with National Drug Service Organization(NDSO) Management in regards to alternating brands and other issues regarding PwBD medication and challenges. The meeting had a core keys in relation with both organization working together in harmony. This Meeting can be marked as successful and Productive Interaction. This is a another milestone of HAL mandate.
 

2

ADVOCACY WORKSHOP IN JULY 2024

When it comes to advocacy, preparation is everything! Key messages, target decision makers, who benefits and how: These are just some of the topics the HAL agreed upon during an advocacy workshop in Maseru. Facilitated by NNHF and national advocacy expert Tankiso Phori, the team is continuing to build upon their advocacy successes as they partner with government, hospital authorities, media and NGOs to enable sustainable access to care and treatment for all people with haemophilia in Lesotho

3

HAM AND HAL MEETING IN JULY 2022

The Haemophilia Association of Lesotho and Haemophilia Association of Mauritius met for a HOT Twinning visit to conduct an Advocacy and Capacity Building Workshop for the HAL Executive Committee, discuss treatment procurement with the National Drug Service Organization, and developed an action plan for 2025. These collaborations are vital in supporting people with Bleeding Disorders.

4

HAL, NNHF AND MOH DG MEETING IN JULY 2024

Stakeholder engagement with MOH Director general and her team

5

HAL,HAM AND NDSO IN JULY 2024

The meeting was all about advocating for save and convenient factor concentrates 

6

HAL, NNHF AND NDSO AT MASERU DISTRICT HOSPITAL IN JULY 2024

In the pursuit to reach to the top, milestones are measured with tortoise steps. Persistence, Patience, consistency and empathy are the tools to keep the fire Burning…
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